Who We Are


 
In short, we’re a nonprofit focused on advancing research and improving care for people with FGIMDs.
A Tradition of Progress
We’ve accomplished a great deal so far, but with your help, the best is yet to come.
Connect with Us
Behind our online presence is a dedicated human staff. Hardworking folks. People trying to make a difference.

Your help will go a long way in the mission to improve care for kids and adults with FGIMDs.
Working with legislators. Funding research. Organizing fundraising event. Plus...
For the most current FGIMD news and opinions, read the work of our bloggers regularly.
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