Personal Stories

The following stories have been submitted by people who are going through some of the same struggles as you or a loved one. It can be therapeutic to share your story, and your words might provide comfort to others who are affected by a Functional Gastrointestinal and Motility Disorder (FGIMD). Click here to share your own story now.

Allison's Personal Story

October 23, 2014
Upper GI Disorders

I never thought I would consider going onto google and typing in: "stories about constipation", reading about these stories, and then feeling inclined to post my own. And yet, here I am. This topic is taboo for our culture, and after reading some of the other stories, this needs to stop. This is a symptom/disease or however you would like to refer to it that needs to be addressed, discussed, tested, and solved once and for all.

Lindsay's Personal Story

October 20, 2014
Fecal Incontinence, Irritable Bowel Syndrome

I have suffered with fecal urgency and incontinence since the birth of my daughter in May 2012. I'm 33 years old. I feel like I am carrying a huge weight around with me, everyday is so mentally exhausting. Everything has to be controlled and revolve around me possibly needing to use the bathroom. Some days I have 2-3 minutes to get there other days it's seconds. I suffer from anxiety and take medication for this. My life was so carefree before. I didn't worry or panic about going to places, I just got ready and off I went.

Stephanie's Personal Story

September 26, 2014

Stephanie's 3rd Annual Awareness Walk for Gastroparesis and Digestive Health was a success!  Read more about it in Stephanie's blog.  You can also still donate to the event and support gastroparesis research here.  

Marsha's Personal Story

September 23, 2014
Irritable Bowel Syndrome

I am now 61 and have suffered with chronic constipation for over 20 years. I've managed over the years but as of 10 years ago, I've used psyillium, miralax, and milk of magnesia as a laxative. Over the past year I've noticed that my bowel habits have changed. I complained to my Gastro doc, but he always blamed it on the wrong foods I ate since I had previous trouble with GERD. When I came into office in March 2014, doubled over in pain in my lower pelvis, he wanted to blame it on gyn issues, but after he ordered a cat scan he then diagnosed me with IBS.

Anonymous' Personal Story

September 12, 2014
Irritable Bowel Syndrome

I'm 24 years old and I've been suffering with IBS since I was 12. This illness has ruined my life. I had to drop out of high school because of this. I had plans to be an on-campus student and that didn't happen either. This is my first year in college due to my IBS symptoms and I will be attending it online. Alone and away from any and all social interactions.
I don't even know what I want or can go for anymore. My original plan was to be a nurse. I don't see that happening right now.


Eliza 's Personal Story

September 11, 2014
All Functional GI & Motility Disorders, Other FGIMD

I don't know what I have because all tests have come back "normal." I wake up with a flat stomach and the first time I eat or drink anything it distends severely. I look suxonths pregnant.

Anonymous' Personal Story

September 08, 2014

I am a 21 year old female, and my onset of GP and intestinal motility issues started when I was 11 years old. I got a terrible illness, and never really got better. I tried to eat, but would feel sick after a few bites. I love to run, and went out for the cross country team, I made varsity as a freshman, but struggled to keep from losing weight the whole time. As a sophmore, I was on track to possibly win state as a senior, but that is when it got really bad. Although I tried to eat, I felt sicker and sicker, that spring I quit track at 65 pounds, I knew it was dangerous.

Jenny's Personal Story

August 29, 2014

I had PID and that infection spread to create an abdominal abscess. Had hysterectomy & intestinal adhesions corrected(taken out & cut apart as they were all stuck together) Since then, it's been heartburn every day. Started w/onions & sugar triggering it. I was 35. Now 63 & every food causes "on fire" sweating, painful heartburn within 30 minutes. I've had testing, all comes back normal. So frustrating, I fear eating at all, but an empty stomach means heartburn too! The Nexium, Prilosec, any of those meds have no effect.I chew countless antacids, usually about 3-4 am.

Anonymous' Personal Story

August 13, 2014
Irritable Bowel Syndrome

hello all.....

Anneli's Personal Story

August 05, 2014
Gastroesophageal Reflux Disease

I have suffered from nausea and stomach aches my entire life. But I did not tell anyone about it until 2008. My parents were aware of these symptoms, but it is difficult to really figure out what's wrong with you when you're just a child. I was terrified about telling them, because I had heard stories about people having gastroscopy (I had never been to the hospital before). But it was awful living this way, not knowing what was wrong with me. In the beginning I thought everyone had these issues, because I haven't gone through a whole day without nausea.

The views expressed on this page are those of the author(s) and do not necessarily represent the views of, and should not be attributed to, the Digestive Health Alliance (DHA) or International Foundation for Functional Gastrointestinal Disorders (IFFGD).