Personal Stories

The following stories have been submitted by people who are going through some of the same struggles as you or a loved one. It can be therapeutic to share your story, and your words might provide comfort to others who are affected by a Functional Gastrointestinal and Motility Disorder (FGIMD). Click here to share your own story now.

Karen's Personal Story

July 26, 2015

im so sad as its hard for me to write long as I have awful EDS hands but I thought I had sent a long story about my suffering with gastroparis not eaten for 6 months stomach and groin pain so bad iv bn rushed to hospital many times I take a very high dose of morphine for my EDS and because I can't tolerateANY food not even liquid food I'm waitin to see a gastro surgeon nxt month I spent most of my young years in hospital as it didn't many laxatives I was takin I didn't go to the toilet for over 5 month iv had awful anal dialations but I finally went to a lovely doctor who said I was suffering

Karen's Personal Story

July 26, 2015

Hi everyone was I pleased to find this page as I'm at my wits end iv even starting goin to church ( which is something iv never done before but I do believe in my angels) iv suffered badly with EDS and everything that goes with it and as a child with unkind cruel parents I had spent over time some years ( if u put them all together) in hospital as I had bad constipation where I didn't go for months and when was given food at home my mother wud love to put two inches of neat horses bran over every meal which made no diffence I went on as I got older to have two brutal anal dialations which were

Nicole Garcia's Personal Story

July 14, 2015
Fecal Incontinence, Dumping Syndrome, Upper GI Disorders, Gastroesophageal Reflux Disease, Pseudo-obstruction, Short Bowel Syndrome, Lower GI Disorders, Other FGIMD

I have been dealing with "undiagnosed" digestive issues since I was 25. I have spent a majority of my 20's and now the beginning of my 30's suffering and living a life controlled by digestive motility disorders.

Anonymous' Personal Story

July 13, 2015
Irritable Bowel Syndrome

I thought you might be interested in my recent experience.

In March, 2015 I became ill with symptoms that were flu-like and resulted in aches and pains, and a fever. After a couple of days my bowel movements stopped and gas pressure and bloating became acute. I went to the ER and they did a cat scan, which showed an intestinal blockage. The Dr. said was that the blockage was caused by adhesions that had formed near the Ileum from my appendicitis operation 45 years ago.

Anonymous' Personal Story

July 06, 2015
Irritable Bowel Syndrome

I am 24 years old and I had been having stomach issues for about a year. Finally went to the doctor who scheduled a EGD and a colonoscopy. There I got diagnosed with Gastritis and IBS-C. I was put on Linzess, IBgard, Prilosec and I take probiotics everyday. I'm still learning to manage my symptoms and learning how to eat right.

Anonymous' Personal Story

July 03, 2015
Irritable Bowel Syndrome, Lower GI Disorders, Other FGIMD

I am dependant on enemas. Will be 63 soon ,have used them for about 35 yrs. I had developed hemroids, had been ill ,not eating ,when I started eating, I had hard stool and forced some bowel movements. A visiting doctor gave me a bottle of powder ( can't remember the name, but it increases bulk) and I took it. Of course my constipation got worse and my hemroids became horrible , I couldn't leave the house because I couldn't sit properly.I refused to go back to that Dr.or any other, until I could see my reg guy .

Josi's Personal Story

June 26, 2015
Irritable Bowel Syndrome

Many of the great notables of our day would defend the widely used verb-age we all know is true "knowledge is power", even scripture teaches us this. I have had to force myself to make drastic changes in lifestyle and diet, including staying informed and realizing "I am my best advocate". Even Hippocrates stated "all diseases begin in the gut"...I armed myself with this knowledge and went head long into my Dr's office ready to share what I've been researching...Her words were not only shocking but self-deflating as well.

April's Personal Story

June 22, 2015

Hi My name is April!!! I am so excited to share my story! Omg first and foremost to everyone living with this God awful disease Gastroparesis I love you and I am praying for you constantly! Well I was diagnosed with diabetes when I was pregnant with my youngest son! Horrible at keeping my levels under control thinking ir was a game! Well in 2010 I had my first set of symptoms and didn't know! I was at work and I started hurting and vomiting everywhere o was rushed to the ER they made me eat some God awful radioactive eggs! Then I had to just wait!

amanda's Personal Story

June 15, 2015
Irritable Bowel Syndrome

my story of my life started with ibs,then very painful spasms of pain and diarrhoea up to twenty times a day , after two children . i then had multiple surgery non bowel related ,gall bladder,hysterectomy etc the intense pain eased ...then my energy levels sank, food no longer seemed to be doing anything .. then pain everywhere crept in even sitting on a chair hurt.
i was then diagnosed as vit d and b12 deficient ,
over the next two yr s my energy levels have drop t even some days to go upstairs is exhausting, i fill up with pain and sleep loads. (overwhelming comatose feeling)

Anonymous' Personal Story

June 12, 2015
Irritable Bowel Syndrome

After 50 years of dealing with IBS may I suggest the following:
What to do when IBS attacks in rush hour traffic.
Prepare an emergency toilet kit and place it in your car. Some people include clean underware and pants.
Emergency toilet kit
Metal bed pan with absorbent bed pan liners (Walmart)
2 bed pads (doggie pee pads work well)
TP and a small package of baby wipes or adult wipes
Small hand sanitizer
Small air freshener
1 small trash can liner
1. Pull off the road to a safe and private spot. Turn off the car and apply the break.

The views expressed on this page are those of the author(s) and do not necessarily represent the views of, and should not be attributed to, the Digestive Health Alliance (DHA) or International Foundation for Functional Gastrointestinal Disorders (IFFGD).