Personal Stories

The following stories have been submitted by people who are going through some of the same struggles as you or a loved one. It can be therapeutic to share your story, and your words might provide comfort to others who are affected by a Functional Gastrointestinal and Motility Disorder (FGIMD). Click here to share your own story now.

Anonymous' Personal Story

October 29, 2014
Fecal Incontinence

At age 50 I had to say good-bye to a very diseased colon, but was encouraged when I learned about j-pouch surgery to create an ileoanal reservoir. This meant a life free of wearing and ileostomy bag -- which did have to wear for a year and did not get along with at all -- and I was excited. However, before I turned 51 I was found unable to continue working due to fecal incontinence, as it is pretty difficult to commute long distances by public transportation when you do not have ready access to a restroom, and your urgency can make or break your day.

Anonymous' Personal Story

October 28, 2014
Gastroesophageal Reflux Disease

It was mid October 2013 and I was instantly awakened by that burning sensation and painful tummy ache that kept me up all night. I later find out that this was as a result of too much pepper sauce in my food that night. By the morning, I felt much better and ignored the rude awakening of the night before. Two wakes later, the symptoms returned! Now even more painful and more frequent. I could not understand why. I visited the district clinic and was given omeprazole and painkillers. Those didn't help. The symptoms persisted. I was beginning to dread when darkness falls.

Susan's Personal Story

October 27, 2014
Irritable Bowel Syndrome

Hello, My name is Susan and I am 52. About 3 1/2 years ago I started getting Really Bad Abdominal Pain. I also have IBS C but I never thought the Pain was due to that ailment and neither do Any of the Many Doctors I have gone to see. I had my Gallbladder out right away and that did Nothing for the pain. The Pain is actually on the right side mid abdomin. I also have Kidney Stones in both Kidneys and have had Four Surgeries for those removals in the past 3 1/2 years. Believe me I know the difference between Those Pains.

Allison's Personal Story

October 23, 2014
Upper GI Disorders

I never thought I would consider going onto google and typing in: "stories about constipation", reading about these stories, and then feeling inclined to post my own. And yet, here I am. This topic is taboo for our culture, and after reading some of the other stories, this needs to stop. This is a symptom/disease or however you would like to refer to it that needs to be addressed, discussed, tested, and solved once and for all.

Lindsay's Personal Story

October 20, 2014
Fecal Incontinence, Irritable Bowel Syndrome

I have suffered with fecal urgency and incontinence since the birth of my daughter in May 2012. I'm 33 years old. I feel like I am carrying a huge weight around with me, everyday is so mentally exhausting. Everything has to be controlled and revolve around me possibly needing to use the bathroom. Some days I have 2-3 minutes to get there other days it's seconds. I suffer from anxiety and take medication for this. My life was so carefree before. I didn't worry or panic about going to places, I just got ready and off I went.

Stephanie's Personal Story

September 26, 2014

Stephanie's 3rd Annual Awareness Walk for Gastroparesis and Digestive Health was a success!  Read more about it in Stephanie's blog.  You can also still donate to the event and support gastroparesis research here.  

Marsha's Personal Story

September 23, 2014
Irritable Bowel Syndrome

I am now 61 and have suffered with chronic constipation for over 20 years. I've managed over the years but as of 10 years ago, I've used psyillium, miralax, and milk of magnesia as a laxative. Over the past year I've noticed that my bowel habits have changed. I complained to my Gastro doc, but he always blamed it on the wrong foods I ate since I had previous trouble with GERD. When I came into office in March 2014, doubled over in pain in my lower pelvis, he wanted to blame it on gyn issues, but after he ordered a cat scan he then diagnosed me with IBS.


Anonymous' Personal Story

September 12, 2014
Irritable Bowel Syndrome

I'm 24 years old and I've been suffering with IBS since I was 12. This illness has ruined my life. I had to drop out of high school because of this. I had plans to be an on-campus student and that didn't happen either. This is my first year in college due to my IBS symptoms and I will be attending it online. Alone and away from any and all social interactions.
I don't even know what I want or can go for anymore. My original plan was to be a nurse. I don't see that happening right now.


Eliza 's Personal Story

September 11, 2014
All Functional GI & Motility Disorders, Other FGIMD

I don't know what I have because all tests have come back "normal." I wake up with a flat stomach and the first time I eat or drink anything it distends severely. I look suxonths pregnant.

Anonymous' Personal Story

September 08, 2014

I am a 21 year old female, and my onset of GP and intestinal motility issues started when I was 11 years old. I got a terrible illness, and never really got better. I tried to eat, but would feel sick after a few bites. I love to run, and went out for the cross country team, I made varsity as a freshman, but struggled to keep from losing weight the whole time. As a sophmore, I was on track to possibly win state as a senior, but that is when it got really bad. Although I tried to eat, I felt sicker and sicker, that spring I quit track at 65 pounds, I knew it was dangerous.

The views expressed on this page are those of the author(s) and do not necessarily represent the views of, and should not be attributed to, the Digestive Health Alliance (DHA) or International Foundation for Functional Gastrointestinal Disorders (IFFGD).