Stephanie's 3rd Annual Awareness Walk for Gastroparesis and Digestive Health was a success! Read more about it in Stephanie's blog. You can also still donate to the event and support gastroparesis research here.
The following stories have been submitted by people who are going through some of the same struggles as you or a loved one. It can be therapeutic to share your story, and your words might provide comfort to others who are affected by a Functional Gastrointestinal and Motility Disorder (FGIMD). Click here to share your own story now.
I am now 61 and have suffered with chronic constipation for over 20 years. I've managed over the years but as of 10 years ago, I've used psyillium, miralax, and milk of magnesia as a laxative. Over the past year I've noticed that my bowel habits have changed. I complained to my Gastro doc, but he always blamed it on the wrong foods I ate since I had previous trouble with GERD. When I came into office in March 2014, doubled over in pain in my lower pelvis, he wanted to blame it on gyn issues, but after he ordered a cat scan he then diagnosed me with IBS.
I'm 24 years old and I've been suffering with IBS since I was 12. This illness has ruined my life. I had to drop out of high school because of this. I had plans to be an on-campus student and that didn't happen either. This is my first year in college due to my IBS symptoms and I will be attending it online. Alone and away from any and all social interactions.
I don't even know what I want or can go for anymore. My original plan was to be a nurse. I don't see that happening right now.
I don't know what I have because all tests have come back "normal." I wake up with a flat stomach and the first time I eat or drink anything it distends severely. I look suxonths pregnant.
I am a 21 year old female, and my onset of GP and intestinal motility issues started when I was 11 years old. I got a terrible illness, and never really got better. I tried to eat, but would feel sick after a few bites. I love to run, and went out for the cross country team, I made varsity as a freshman, but struggled to keep from losing weight the whole time. As a sophmore, I was on track to possibly win state as a senior, but that is when it got really bad. Although I tried to eat, I felt sicker and sicker, that spring I quit track at 65 pounds, I knew it was dangerous.
I had PID and that infection spread to create an abdominal abscess. Had hysterectomy & intestinal adhesions corrected(taken out & cut apart as they were all stuck together) Since then, it's been heartburn every day. Started w/onions & sugar triggering it. I was 35. Now 63 & every food causes "on fire" sweating, painful heartburn within 30 minutes. I've had testing, all comes back normal. So frustrating, I fear eating at all, but an empty stomach means heartburn too! The Nexium, Prilosec, any of those meds have no effect.I chew countless antacids, usually about 3-4 am.
I have suffered from nausea and stomach aches my entire life. But I did not tell anyone about it until 2008. My parents were aware of these symptoms, but it is difficult to really figure out what's wrong with you when you're just a child. I was terrified about telling them, because I had heard stories about people having gastroscopy (I had never been to the hospital before). But it was awful living this way, not knowing what was wrong with me. In the beginning I thought everyone had these issues, because I haven't gone through a whole day without nausea.
When I was in second grade in 1995 I started to have stomach issues. I was never a very large child and didn't have any weight that I could afford to lose. Over several months I lost so much weight I almost had to be hospitalized. All I knew was every time I ate I felt so sick- so I'd eat just a bite or two and stop. My mother was pushing my pediatrician for answers. His response after switching me to a lactose free diet (which didn't make a difference) was that it was all my head. I also endured a barium x-ray of my GI tract.
I am in my 50's Very shortly after I eat, I have to poop. I can hold it for a few minutes max. This situation I can control to some extent. Other times, without warning, I feel it coming out and cant stop it.
The views expressed on this page are those of the author(s) and do not necessarily represent the views of, and should not be attributed to, the Digestive Health Alliance (DHA) or International Foundation for Functional Gastrointestinal Disorders (IFFGD).