Personal Stories

The following stories have been submitted by people who are going through some of the same struggles as you or a loved one. It can be therapeutic to share your story, and your words might provide comfort to others who are affected by a Functional Gastrointestinal and Motility Disorder (FGIMD). Click here to share your own story now.

Anonymous' Personal Story

November 19, 2014
Irritable Bowel Syndrome

I believe I have IBS. I have weird sounding gas followed by a bowel movement. I do this whether I eat or not. It's worse if I eat. I will go about 10 times without food. I'll have to go about 15 times if I eat. I generally go about 20 to 25 times a day. I can't even sit down without having to go. I know I have bad stomach problems. No one should have to move their bowels this much. It seems like I go every few seconds. If anyone else has stomach problems this bad how can I control them better. I'm tired of living on the toilet. Have been this way since I was 13 I am now 24.

Anonymous' Personal Story

November 13, 2014
Gastroparesis

I was always able to eat anything I wanted without gaining any weight. I was and still am very athletic and in shape. I am only 16 years old and got diagnosed with gastroparesis April of 2014. My symptoms began in January, and I was tested for many different types of bacterial infections but every result was normal. My everyday symptoms were dizziness, nausea, headache, abdominal pain, weight loss, and exhaustion. Since my diagnosis, ive realized that it is hard to enjoy everyday activities without having a fear of throwing up.

anonymous' Personal Story

November 13, 2014
Irritable Bowel Syndrome

I'm a 29 almost 30 yr old female. I've been suffering from IBS-C since my mid teens, and it has become progressively worse since then. My symptoms aren't consistant. I go through phases where my pain and other symptoms it's unbearable, to times where it's tolerable.

Anonymous' Personal Story

November 13, 2014
Irritable Bowel Syndrome

I am 29 years old and have been suffering IBS-D (sometimes C) since I was possibly 15 years old. I was officially diagnosed by my GI about 3 and a half years ago. Its good to know what it is, but sadly so devastating there is not alot that can be done. I useto have specific symptoms that would indicate a flare up, but as time goes on I find symptoms changing yearly. Right now I suffer from sharp painful cramping across the top, bottom and down left side of my stomach. Which in turn leads to explosive watery D as much as 5-7 times with 2 hours.

Anonymous' Personal Story

November 11, 2014
All Functional GI & Motility Disorders, Irritable Bowel Syndrome, Gastroparesis, Lower GI Disorders

In my early 40s I had episodes of stunning "gas pains" in my lower left gut which I later realized were episodes of diverticulitis. I also began to develop a tendency toward constipation, but never due to hard, dry stools. I also had a very serious lactose intolerance since childhood. The smallest amount of milk or yogurt in some sauce or other would leave me doubled over in pain.

Parker C.'s Personal Story

November 10, 2014
All Functional GI & Motility Disorders, Fecal Incontinence, Dumping Syndrome, Irritable Bowel Syndrome, Gastroesophageal Reflux Disease, Gastroparesis

I had just finished the electronics technician school for submarines in Groton,CT when I was diagnosed with diabetes. Not wanting to lose another submariner, especially a freshly trained one the doctor convinced me to stay in the Navy. I was in prime shape, running 10 miles a day and the doc told me if I keep working out, I had nothing to worry about and no further treatment was needed. Unfortunately, I have type one diabetes and require insulin which I did not receive in the Navy. This led to many complications. Food would rot in my gut and I threw up countless times daily.

Julie's Personal Story

November 05, 2014
All Functional GI & Motility Disorders, Cyclic Vomiting Syndrome, Gastroparesis

Never thought I would see the day that I would be writing on Google about my dis-motility disorders. Well here goes, I have sooo many dis-orders, that the Cleveland Clinic and Mayo Clinic have both told me there is nothing they can do for me, at the age of 50, am now 55.I now am on TPN, probably for the rest of my life, because when I eat, it stays in my stomach and intestines and ROT'S and I then end up in the hospital because the pain is horrendous,so I am hooked up to a bag of formula, much like baby formula for 12 hours everyday.

2 Comments

Anonymous' Personal Story

October 31, 2014
Irritable Bowel Syndrome

I felt I needed to write something as for years I have had mild IBS, I learnt from the age of 16 (now 28) exactly what triggered it, did all the tai chi, yoga, aromatherapy courses incase stress was an issue and had always managed it very well and it never affected my quality of life. Until now, I have recently been diagnosed with severe IBS triggered by an unknown virus, I may also have endemetriosis (I am waiting for the referral to gynae at the moment) and also have had underlying overactive bladder syndrome (which was mistakingly diagnosed over the years as UTIS).

Anonymous' Personal Story

October 29, 2014
Fecal Incontinence

At age 50 I had to say good-bye to a very diseased colon, but was encouraged when I learned about j-pouch surgery to create an ileoanal reservoir. This meant a life free of wearing and ileostomy bag -- which did have to wear for a year and did not get along with at all -- and I was excited. However, before I turned 51 I was found unable to continue working due to fecal incontinence, as it is pretty difficult to commute long distances by public transportation when you do not have ready access to a restroom, and your urgency can make or break your day.

2 Comments

Anonymous' Personal Story

October 28, 2014
Gastroesophageal Reflux Disease

It was mid October 2013 and I was instantly awakened by that burning sensation and painful tummy ache that kept me up all night. I later find out that this was as a result of too much pepper sauce in my food that night. By the morning, I felt much better and ignored the rude awakening of the night before. Two wakes later, the symptoms returned! Now even more painful and more frequent. I could not understand why. I visited the district clinic and was given omeprazole and painkillers. Those didn't help. The symptoms persisted. I was beginning to dread when darkness falls.

The views expressed on this page are those of the author(s) and do not necessarily represent the views of, and should not be attributed to, the Digestive Health Alliance (DHA) or International Foundation for Functional Gastrointestinal Disorders (IFFGD).