Personal Stories

The following stories have been submitted by people who are going through some of the same struggles as you or a loved one. It can be therapeutic to share your story, and your words might provide comfort to others who are affected by a Functional Gastrointestinal and Motility Disorder (FGIMD). Click here to share your own story now.

Josi's Personal Story

June 26, 2015
Irritable Bowel Syndrome

Many of the great notables of our day would defend the widely used verb-age we all know is true "knowledge is power", even scripture teaches us this. I have had to force myself to make drastic changes in lifestyle and diet, including staying informed and realizing "I am my best advocate". Even Hippocrates stated "all diseases begin in the gut"...I armed myself with this knowledge and went head long into my Dr's office ready to share what I've been researching...Her words were not only shocking but self-deflating as well.

April's Personal Story

June 22, 2015
Gastroparesis

Hi My name is April!!! I am so excited to share my story! Omg first and foremost to everyone living with this God awful disease Gastroparesis I love you and I am praying for you constantly! Well I was diagnosed with diabetes when I was pregnant with my youngest son! Horrible at keeping my levels under control thinking ir was a game! Well in 2010 I had my first set of symptoms and didn't know! I was at work and I started hurting and vomiting everywhere o was rushed to the ER they made me eat some God awful radioactive eggs! Then I had to just wait!

amanda's Personal Story

June 15, 2015
Irritable Bowel Syndrome

my story of my life started with ibs,then very painful spasms of pain and diarrhoea up to twenty times a day , after two children . i then had multiple surgery non bowel related ,gall bladder,hysterectomy etc the intense pain eased ...then my energy levels sank, food no longer seemed to be doing anything .. then pain everywhere crept in even sitting on a chair hurt.
i was then diagnosed as vit d and b12 deficient ,
over the next two yr s my energy levels have drop t even some days to go upstairs is exhausting, i fill up with pain and sleep loads. (overwhelming comatose feeling)

Anonymous' Personal Story

June 12, 2015
Irritable Bowel Syndrome

After 50 years of dealing with IBS may I suggest the following:
What to do when IBS attacks in rush hour traffic.
Prepare an emergency toilet kit and place it in your car. Some people include clean underware and pants.
Emergency toilet kit
Metal bed pan with absorbent bed pan liners (Walmart)
2 bed pads (doggie pee pads work well)
TP and a small package of baby wipes or adult wipes
Small hand sanitizer
Small air freshener
1 small trash can liner
Procedure:
1. Pull off the road to a safe and private spot. Turn off the car and apply the break.

Anonymous' Personal Story

June 07, 2015
Irritable Bowel Syndrome

I've had symptoms of IBS for over the last two years or so... just before I graduated. I didn't think much of it at first and thought the symptoms would pass. As a student my diet wasn't great but it wasn't that bad either. Soon afterwards the stomach pains became a part of my everyday routine, followed by constipation - I would drink litres of juice or lemon water, eat bags of prunes and apricots after taking medicated pills desperately waiting for relief. Two years down the line I can now add flatulence to that list. IBS is really upsetting and for me it is also stress related.

Anonymous' Personal Story

June 03, 2015
Irritable Bowel Syndrome

I'm a46 year old female sitting in a hotel room with painful symptoms of ibs. I've been working with a g.i. Doctor who suggested I look into a low Fodmap diet. I did, and symptoms greatly improved! It's been tough eliminating foods and introducing them- results will vary and it gets confusing. I recommend using a nutritionist- next on my docket!! However, I've lapsed on being conscious of what I eat and am now paying the price with bloating, extreme bms and cramping. Diligence is the key-along with exercise and a healthy way to alleviate stress.

Anonymous' Personal Story

June 01, 2015
Fecal Incontinence, Irritable Bowel Syndrome

I am a 70 year old woman who was diagnosed with IBS-D about 25 years ago, though I think I had mild symptoms for 15 years before that.  Since then, I have gone through many different treatments and approaches, and have visited numerous doctors and practitioners.  Some things worked for a while, but then stop working and I am back looking for the "miracle" cure... and everytime something stops working, the symptoms, especially the diarrhea gets worse. 

Anonymous' Personal Story

June 01, 2015
Irritable Bowel Syndrome

I majored in nursing and graduated on top of my class (kind of a straight A student back then) but then I quit and didn't practice. I tried psychology, excelled and got a free ride to pursue a  master degree to become a clinician. After school, almost all the places I applied to called me for interview. Phone interviews went well but when I went for face to face interviews, they all turned me down. The only reason for my awful career failures is that I have IBS and I literally stink like feces all the time.

Deb's Personal Story

May 29, 2015
Gastroesophageal Reflux Disease, Pseudo-obstruction, Gastroparesis, Other FGIMD

Gastroparesis the beginning. I believe my journey began in 1989 with the first migraine, but I didn't realize it. The first migraine I had was a reaction to Indocin. I thought, at the time! And it may very well have been! What you also need to know? Is that I was an avid exerciser, biker, jogger, and really worked at being healthy. Always had sinus and constipation issues but did my best to get around those without slowing down and you would not see me near a doctors office~~ until it interfered with my life! Which one winter it did with pleurisy...

1 Comments

christine's Personal Story

May 27, 2015
Fecal Incontinence

Cheer up folks!!! I read stories about people staying home all the time and scared to leave the house. I have had incontinence for over 10 years. I am now a 55 year old woman who wears diapers and has a wonderful life. I can go most anywhere and remain stealth about my diaper issues. I got used to them, stopped worrying about it and just enjoy life. Most of my girlfriends at work know I have to wear them and are understanding, but the truth of the matter is, most of the time they dont even remember I am wearing them. I dont tell folks that I have a mess in my diaper.

The views expressed on this page are those of the author(s) and do not necessarily represent the views of, and should not be attributed to, the Digestive Health Alliance (DHA) or International Foundation for Functional Gastrointestinal Disorders (IFFGD).