Personal Stories

The following stories have been submitted by people who are going through some of the same struggles as you or a loved one. It can be therapeutic to share your story, and your words might provide comfort to others who are affected by a Functional Gastrointestinal and Motility Disorder (FGIMD). Click here to share your own story now.

Julene's Personal Story

January 25, 2015

I was officially diagnosed with Gastroparesis in March of 2014. However, my doctors feel that I have been suffering with it for much longer. In 2007 following a surgical biopsy I was diagnosed with Reflux. I had started experiencing classic reflux symptoms with heart burn and a lump sensation in my throat. The piece that didn't fit was constant and random regurgitation of undigested food. I started anti-reflux medication and significantly changed my diet. I felt well for many years controlling my symptoms with diet. I was living as cleanly as possible,eating well, and exercising regularly.

Rebecca's Personal Story

January 24, 2015

My story begins and ends with a plea to lawmakers. Our Declaration of Independence lists our "inalienable rights" of "life, liberty and the pursuit of happiness". I ask you to give me and my fellow sufferers with gastroparesis those rights. There are numerous medications and treatments for gastroparesis in other countries that have not been allowed in the USA. These are approved by the World Health Organization using the same strict standards as our own FDA. Why are these treatment options not available to us?

Brittany's Personal Story

January 23, 2015
Irritable Bowel Syndrome

I have been suffering from what the doctors diagnosed as IBS for as long as I can remember. I can go for an extended period of time with just simple minor discomforts and live a "normal" life. But when I have what I call a flare, it's like my life stops. I go through periods where it hurts to even think about eating and the nausea feels like it eats me alive. During this time I have been known to lose up to 50lbs which at 4'11 is a dramatic weight change. While I have been told that I will never have a quote "normal life" I know that I am strong enough to have a good life.

Deb's Personal Story

January 23, 2015
Cyclic Vomiting Syndrome, Upper GI Disorders, Pseudo-obstruction, Gastroparesis, Lower GI Disorders, Other FGIMD

Gastroparesis the beginning.
I believe my journey began in 1989 with the first migraine, but I didn't realize it. The first migraine I had was a reaction to Indocin.
I thought, at the time! And it may very well have been!
What you also need to know? Is that I was an avid exerciser, biker, jogger, and really worked at being healthy. Always had sinus and constipation issues but did my best to get around those without slowing down and you would not see me near a doctors office~~ until it interfered with my life!

Melissa's Personal Story

January 22, 2015

In early February 2014, I spent a week in the hospital and was eventually diagnosed with gastroparesis. My life changed in ways I could not have imagined – overnight. One day, I was able to eat at buffets, if I so desired, and the next day, I was unable to tolerate all foods and liquids. I was hospitalized with severe pain and vomiting, put through a battery of tests (including one particularly terrible one where they forced a tube down my nose and pumped my stomach), diagnosed, given only a brief explanation of my illness and its treatment, and sent home.

Stephanie's Personal Story

January 21, 2015

Anonymous' Personal Story

December 30, 2014
Hirschsprung's Disease

Okay truly I don't know what I have aside from chronic constipation but there is a question mark in my medical notes for Hirschsprung's which is what i believe i may have.

I am writing because i am a bit down about my condition at the moment.

Magda's Personal Story

December 19, 2014

Im a 37 year old female. i had my first IBS flare up, or so they called it, like 2 years ago. That time symptoms were constant pain in the left lower quadrant and constipation. It lasted for two months. The second flare up was just 3 months after my first pregnancy. Symptoms this time changed. I started experiencing constant diarrhea and pain in the left upper quadrant. i had several tests like blood tests, cancer markers, upper and lower abdominal ultrasound, stool samples for parasites, all came up clear. My GP and gastroenterlogist insist that i have IBS.

Anonymous' Personal Story

December 09, 2014
Irritable Bowel Syndrome

Hi, I am a fifteen year-old female suffering severe IBS. I've had this problem for over 10 months. First of all, I want to start out with my menstrual problems... Ever since I was 12 years old, I have always had heavy menstrual periods that would last almost ALL month long. It was complete hell. I would have terrible cramps that would stop me from sleeping at night, I constantly had to leave school because it would go through my pants, I was mad all of the time because of my horrific mood swings and also because I had no control over my period.

Anonymous' Personal Story

December 03, 2014
Fecal Incontinence

Several years ago I began having episodes of fecal incontinence at night while asleep. Sometimes every few months or multiple times a week. I chalked it up to the frequent diarrhea I had been having since my gastric bypass in 2002. Then I began having minor spotting accidents during the day. I began taking extra clothes to work just in case and lived in fear of a "big one at work" I couldn't hide. Eventually, it got to the point that if I didn't make it to the bathroom at the first indication I had to go, I would mess myself either a little a sometimes a lot.

The views expressed on this page are those of the author(s) and do not necessarily represent the views of, and should not be attributed to, the Digestive Health Alliance (DHA) or International Foundation for Functional Gastrointestinal Disorders (IFFGD).