Personal Stories

The following stories have been submitted by people who are going through some of the same struggles as you or a loved one. It can be therapeutic to share your story, and your words might provide comfort to others who are affected by a Functional Gastrointestinal and Motility Disorder (FGIMD). Click here to share your own story now.

Lizzie's Personal Story

August 29, 2015
Gastroparesis

About 7 years ago I was so sick, I looked like I was ready to have triplets. I was in terrible pain, was nautious and vomiting. I went to my GI and he started performing all these test. Then one day I was asked to bring two pieces of buttered toast for my next test, they provided the hard boil egg that had some kind of mechanism in it where the tech could take pictures every 15 minutes for two hours and actually see where the egg was moving through my digestive system. Well the egg did not move.

Anonymous' Personal Story

August 24, 2015
Gastroparesis

hi am mandi, my gastroparesis story .It over 4 years ago i almost completely fated in Walmart and i couldn't walk back home .

AnonymousBarbara's Personal Story

August 24, 2015
Upper GI Disorders

I have dealt with constipations as long as I can remember. I am now 65 in good health apart from the fact that now I have diarrhea that can happen anytime anywhere. My husband and I moved to OK 1 year ago from CA. 2 months ago I was in a Belk Department store looking for a gift for my grand daughter and I knew I was going to loose control of my bowels. The ladies bathroom room was at the other end of the building and I was in much stress. I ran to the ladies changing room and lost control. I told a sales girl, but could not wait around to explain and ran out and drove home.

Darlene's Personal Story

August 15, 2015
Gastroparesis

My story started around 2008 and it took 6 years to get a correct diagnosis for my Gastroparesis. My health issues all started when I was working with a family member. First my blood pressure went sky high, then I started having stress and anxiety problems. A few years before this all started I was using some cleaning fluid to remove spots from some clothes, not thinking about breathing in fumes from the cleaner while working in my small laundry room. I could not eat because I got so full so fast and I was short of breath and of course that caused panic attacks.

Karen's Personal Story

July 26, 2015
Gastroparesis

im so sad as its hard for me to write long as I have awful EDS hands but I thought I had sent a long story about my suffering with gastroparis not eaten for 6 months stomach and groin pain so bad iv bn rushed to hospital many times I take a very high dose of morphine for my EDS and because I can't tolerateANY food not even liquid food I'm waitin to see a gastro surgeon nxt month I spent most of my young years in hospital as it didn't many laxatives I was takin I didn't go to the toilet for over 5 month iv had awful anal dialations but I finally went to a lovely doctor who said I was suffering

1 Comments

Karen's Personal Story

July 26, 2015
Gastroparesis

Hi everyone was I pleased to find this page as I'm at my wits end iv even starting goin to church ( which is something iv never done before but I do believe in my angels) iv suffered badly with EDS and everything that goes with it and as a child with unkind cruel parents I had spent over time some years ( if u put them all together) in hospital as I had bad constipation where I didn't go for months and when was given food at home my mother wud love to put two inches of neat horses bran over every meal which made no diffence I went on as I got older to have two brutal anal dialations which were

Nicole Garcia's Personal Story

July 14, 2015
Fecal Incontinence, Dumping Syndrome, Upper GI Disorders, Gastroesophageal Reflux Disease, Pseudo-obstruction, Short Bowel Syndrome, Lower GI Disorders, Other FGIMD

I have been dealing with "undiagnosed" digestive issues since I was 25. I have spent a majority of my 20's and now the beginning of my 30's suffering and living a life controlled by digestive motility disorders.

Anonymous' Personal Story

July 13, 2015
Irritable Bowel Syndrome

I thought you might be interested in my recent experience.

In March, 2015 I became ill with symptoms that were flu-like and resulted in aches and pains, and a fever. After a couple of days my bowel movements stopped and gas pressure and bloating became acute. I went to the ER and they did a cat scan, which showed an intestinal blockage. The Dr. said was that the blockage was caused by adhesions that had formed near the Ileum from my appendicitis operation 45 years ago.

Anonymous' Personal Story

July 06, 2015
Irritable Bowel Syndrome

I am 24 years old and I had been having stomach issues for about a year. Finally went to the doctor who scheduled a EGD and a colonoscopy. There I got diagnosed with Gastritis and IBS-C. I was put on Linzess, IBgard, Prilosec and I take probiotics everyday. I'm still learning to manage my symptoms and learning how to eat right.

Anonymous' Personal Story

July 03, 2015
Irritable Bowel Syndrome, Lower GI Disorders, Other FGIMD

I am dependant on enemas. Will be 63 soon ,have used them for about 35 yrs. I had developed hemroids, had been ill ,not eating ,when I started eating, I had hard stool and forced some bowel movements. A visiting doctor gave me a bottle of powder ( can't remember the name, but it increases bulk) and I took it. Of course my constipation got worse and my hemroids became horrible , I couldn't leave the house because I couldn't sit properly.I refused to go back to that Dr.or any other, until I could see my reg guy .

The views expressed on this page are those of the author(s) and do not necessarily represent the views of, and should not be attributed to, the Digestive Health Alliance (DHA) or International Foundation for Functional Gastrointestinal Disorders (IFFGD).