Personal Stories

The following stories have been submitted by people who are going through some of the same struggles as you or a loved one. It can be therapeutic to share your story, and your words might provide comfort to others who are affected by a Functional Gastrointestinal and Motility Disorder (FGIMD). Click here to share your own story now.

Logan's Personal Story

May 20, 2015
Irritable Bowel Syndrome

I was diagnosed with IBS recently. I am young, and for that I know that I have years ahead of me to go. But I feel that I should't worry. Pain will pass, as it is only temporary. Just take it a day at a time, sometimes even minute by minute. It will pass. Don't worry and enjoy what you have. You have been blessed. Don't let anything stop you from doing what you want.
Thank you for letting me write. It helps me too.

Anonymous' Personal Story

May 16, 2015
Lower GI Disorders

Thank you to everyone who was willing to share their storiy. They gave me the courage to contribute here. I am a 46 year old male and I have suffered from chronic constipation since early childhood and the cause is not mysterious. I was born with a neurogenic bowel and bladder defect so bowel function has never been normal for me. My chlldhood was filled with painful enemas. But what is most depressing for me right now is that I have to regularly disimpact my rectum of hard, dry, stool. It is just that bad and needless to say it does not make me feel very good about myself.

Anonymous' Personal Story

May 14, 2015
Irritable Bowel Syndrome

I am a 51 year old woman. As a child (think 3 grade or so), I had constant constipation. Eventually, after a few years, it called itself down and I had a normal high school and college life (except what they thought was an ulcer, have since found out it was hiatal hernia). But then I graduated from college and the real world took it's toll. At 27 I was diagnosed with IBS. Every thing I ate went right through me in about 25 minutes or so. The doctors tried several anti-spasmodics which would work for a period, then not at all.

Shirley's Personal Story

April 29, 2015
Irritable Bowel Syndrome

I've had IBS-D for over 20years now and have learned that anything high in fiber, fast food, prepackaged foods, alcohol and even milks will keep me running to the bathroom 4-5 times a day. sometimes it just doesn't matter what I eat, I'll get bloated, pains and then the diarrhea will start the next day. Of course, 30 minutes after I eat I'll have to use the restroom. So timing is everything. However, I don't let this condition stop me from living my life. I think the first part of having IBS is not being ashamed and hide your condition.

Anonymous' Personal Story

April 28, 2015
Lower GI Disorders

IBS-C started in the summer of 1975 and I was hospitalized for 3 days in which I endured both upper and lower tests, and the doctor attributed the problem to stress; so I stopped driving taxi on the night shift, changed my diet, cut out alcohol, and went back to school.

Phyllis's Personal Story

April 28, 2015
Gastroparesis

I have had gastroparesis since 2008. I am dealing with the symptoms quite well currently. However, I developed Tardive Dyskinesia in Dec. 2013 after taking Reglan for almost 5 years. After many searches online regarding GP and TD, I discovered there have been lawsuits brought against the manufacturers of Reglan by TD sufferers. I am interested in pursuign something like that because I know my care providers I was seeing in 2008 and those I have seen since never warned me of the risks of taking Reglan long term.

Dina's Personal Story

April 28, 2015
All Functional GI & Motility Disorders

I had an ulcer when I was 7 years old. My first experience with internal problems. In my 20's it was issues with constipation. It seemed like I tried everything under the sun. Some would work for awhile and then stop. In my mid 30's I was starting to have severe digestive issues, then pain, etc. I had an endoscopy which showed nothing. I was given different acid reducers finally working up to the PPI's. Then more problems so was sent for more tests. It took a year and a half to find out my gallbladder was not working. No stones, it was diagnosed as biliary dyskenesia.

mike's Personal Story

April 28, 2015
Irritable Bowel Syndrome

I had to take laxatives for 52 years. over the that made me more spastic as time passed . now I am living with terrible ever day. I almost pray for diarria. I am going to ask for removal of my colon. that can have consequences that could kill me. but right know I am living a unbelieving hell. I pray every but it gets worse . god help me please.

Debbie's Personal Story

April 28, 2015
Other FGIMD

This is my mother's story.  April 2013, elective surgery for lower back pain.  Same day surgery, in and out.  Within 48 hours my mother rushed to the hospital with a blood clot in the lower back and was sent to surgery to alleviate.  Within a week of the 2nd surgery she was again hospitalized for fluid.

Anonymous' Personal Story

April 19, 2015

My story is a bit different. I started going through Menopause early 2013. In addition to the Menopause symptoms, I started having a unexpected leakages of gas. Over the past two years, this has become worse, where it is a constant daily occurrence. I cannot go to church, work, social gatherings, etc. without stinking out everyone around me. I have become so accustom to the odor, that I am not aware of how bad it is until others react. I have been to several doctors, having a colonoscopy, endoscopy, MRI, CT enterography, anorectal manometry, etc.

The views expressed on this page are those of the author(s) and do not necessarily represent the views of, and should not be attributed to, the Digestive Health Alliance (DHA) or International Foundation for Functional Gastrointestinal Disorders (IFFGD).