Gastroparesis

hi am mandi, my gastroparesis story .It over 4 years ago i almost completely fated in Walmart and i couldn't walk back home . after so many test and so many diets i couldn't find out what was going on .i got to point i felt i was dieing .then i change my diet i was feeling better and all was fine tell it cost to much but i moved on with my life and move to Cali .when got there i started getting bad again but least i can ride bike and dance but no clue that would no longer be in my life .to the point i couldn't do anything anymore when i move back to Oregon i got so sick that i couldn't...

My story started around 2008 and it took 6 years to get a correct diagnosis for my Gastroparesis. My health issues all started when I was working with a family member. First my blood pressure went sky high, then I started having stress and anxiety problems. A few years before this all started I was using some cleaning fluid to remove spots from some clothes, not thinking about breathing in fumes from the cleaner while working in my small laundry room. I could not eat because I got so full so fast and I was short of breath and of course that caused panic attacks. I dropped 35 lbs in less...

im so sad as its hard for me to write long as I have awful EDS hands but I thought I had sent a long story about my suffering with gastroparis not eaten for 6 months stomach and groin pain so bad iv bn rushed to hospital many times I take a very high dose of morphine for my EDS and because I can't tolerateANY food not even liquid food I'm waitin to see a gastro surgeon nxt month I spent most of my young years in hospital as it didn't many laxatives I was takin I didn't go to the toilet for over 5 month iv had awful anal dialations but I finally went to a lovely doctor who said I was...

Hi everyone was I pleased to find this page as I'm at my wits end iv even starting goin to church ( which is something iv never done before but I do believe in my angels) iv suffered badly with EDS and everything that goes with it and as a child with unkind cruel parents I had spent over time some years ( if u put them all together) in hospital as I had bad constipation where I didn't go for months and when was given food at home my mother wud love to put two inches of neat horses bran over every meal which made no diffence I went on as I got older to have two brutal anal dialations which...

Hi My name is April!!! I am so excited to share my story! Omg first and foremost to everyone living with this God awful disease Gastroparesis I love you and I am praying for you constantly! Well I was diagnosed with diabetes when I was pregnant with my youngest son! Horrible at keeping my levels under control thinking ir was a game! Well in 2010 I had my first set of symptoms and didn't know! I was at work and I started hurting and vomiting everywhere o was rushed to the ER they made me eat some God awful radioactive eggs! Then I had to just wait! They never told me what was going...

Deb

Gastroparesis the beginning. I believe my journey began in 1989 with the first migraine, but I didn't realize it. The first migraine I had was a reaction to Indocin. I thought, at the time! And it may very well have been! What you also need to know? Is that I was an avid exerciser, biker, jogger, and really worked at being healthy. Always had sinus and constipation issues but did my best to get around those without slowing down and you would not see me near a doctors office~~ until it interfered with my life! Which one winter it did with pleurisy... My Dr just shook his head, when I said...

I have had gastroparesis since 2008. I am dealing with the symptoms quite well currently. However, I developed Tardive Dyskinesia in Dec. 2013 after taking Reglan for almost 5 years. After many searches online regarding GP and TD, I discovered there have been lawsuits brought against the manufacturers of Reglan by TD sufferers. I am interested in pursuign something like that because I know my care providers I was seeing in 2008 and those I have seen since never warned me of the risks of taking Reglan long term. Nor did they mention the issuance of a black box warning on the drug or...

Hi my name is Rebecca and I was diagnosed with Mild Gastroparesis in 2006. I have always suffered with constipation from childhood and was very familiar with laxatives growing up. I also had a lot of tummy aches. However when I became a young adult; I found a way to keep my constipation under control for first time in my life; and, that was simply by drinking a 6 oz. glass of Prune Juice followed by a glass of water each night before bed. This worked for me for about 17 - 20 years. And for the first time in my life, i did not suffer with tummy aches, bladder issues or any digestive...

My Gastroparesis Story

My name is Trisha and I am sharing my personal story to give you an inside look at what it's like living with this awful and misunderstood disease. I have had GI-related issues and numerous sporadic episodes of being unable to eat due to pain and nausea/vomiting for many years, but none of the episodes has been anywhere close to being as severe or long-lasting as the issue I have now.

In early February of 2013, I became sick with what we thought was a common stomach bug. I was unable to eat or receive an adequate amount of fluids orally, due to severe...

DHA advocate Lindsay has made great strides to raise awareness and funds for gastroparesis. The first annual Go With Your Gut 5K was held in Hilliard, Ohio, on August 23rd of 2014. Lindsay crushed her $3,000 fundraising goal, bringing in more than $9,000 to benefit research into idiopathic gastroparesis through the DHA and IFFGD. Her dedication to improving the lives of all people with gastroparesis is an inspiration. Thank you, Lindsay.

An Advocate's Story

My name is Lindsay Slivka. I am a 36 year old wife and mother of two children....

The views expressed on this page are those of the author(s) and do not necessarily represent the views of, and should not be attributed to, the Digestive Health Alliance (DHA) or International Foundation for Functional Gastrointestinal Disorders (IFFGD).

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