Gastroparesis

Hi My name is April!!! I am so excited to share my story! Omg first and foremost to everyone living with this God awful disease Gastroparesis I love you and I am praying for you constantly! Well I was diagnosed with diabetes when I was pregnant with my youngest son! Horrible at keeping my levels under control thinking ir was a game! Well in 2010 I had my first set of symptoms and didn't know! I was at work and I started hurting and vomiting everywhere o was rushed to the ER they made me eat some God awful radioactive eggs! Then I had to just wait! They never told me what was going...

Deb

Gastroparesis the beginning. I believe my journey began in 1989 with the first migraine, but I didn't realize it. The first migraine I had was a reaction to Indocin. I thought, at the time! And it may very well have been! What you also need to know? Is that I was an avid exerciser, biker, jogger, and really worked at being healthy. Always had sinus and constipation issues but did my best to get around those without slowing down and you would not see me near a doctors office~~ until it interfered with my life! Which one winter it did with pleurisy... My Dr just shook his head, when I said...

I have had gastroparesis since 2008. I am dealing with the symptoms quite well currently. However, I developed Tardive Dyskinesia in Dec. 2013 after taking Reglan for almost 5 years. After many searches online regarding GP and TD, I discovered there have been lawsuits brought against the manufacturers of Reglan by TD sufferers. I am interested in pursuign something like that because I know my care providers I was seeing in 2008 and those I have seen since never warned me of the risks of taking Reglan long term. Nor did they mention the issuance of a black box warning on the drug or...

Hi my name is Rebecca and I was diagnosed with Mild Gastroparesis in 2006. I have always suffered with constipation from childhood and was very familiar with laxatives growing up. I also had a lot of tummy aches. However when I became a young adult; I found a way to keep my constipation under control for first time in my life; and, that was simply by drinking a 6 oz. glass of Prune Juice followed by a glass of water each night before bed. This worked for me for about 17 - 20 years. And for the first time in my life, i did not suffer with tummy aches, bladder issues or any digestive...

My Gastroparesis Story

My name is Trisha and I am sharing my personal story to give you an inside look at what it's like living with this awful and misunderstood disease. I have had GI-related issues and numerous sporadic episodes of being unable to eat due to pain and nausea/vomiting for many years, but none of the episodes has been anywhere close to being as severe or long-lasting as the issue I have now.

In early February of 2013, I became sick with what we thought was a common stomach bug. I was unable to eat or receive an adequate amount of fluids orally, due to severe...

DHA advocate Lindsay has made great strides to raise awareness and funds for gastroparesis. The first annual Go With Your Gut 5K was held in Hilliard, Ohio, on August 23rd of 2014. Lindsay crushed her $3,000 fundraising goal, bringing in more than $9,000 to benefit research into idiopathic gastroparesis through the DHA and IFFGD. Her dedication to improving the lives of all people with gastroparesis is an inspiration. Thank you, Lindsay.

An Advocate's Story

My name is Lindsay Slivka. I am a 36 year old wife and mother of two children....

I thought my life couldn't possibly get any worse. Yes, I have an amazing husband and three awesome kids ranging from age 13-22.
Sometime around February of 2014 I was called to come into my doctors office immediately. He walked in the room and had two boxes in his one hand. I shook my head, "No No No" as he said "Yes Yes Yes". My blood sugar was way of the grid. I was close to kidney failure.
He monitored me closely for weeks. And I corrected my diet, took my meds faithfully and joined the gym.
I hated the idea of having diabetes but I was smiling. I lost 60lbs and...

I was officially diagnosed with Gastroparesis in March of 2014. However, my doctors feel that I have been suffering with it for much longer. In 2007 following a surgical biopsy I was diagnosed with Reflux. I had started experiencing classic reflux symptoms with heart burn and a lump sensation in my throat. The piece that didn't fit was constant and random regurgitation of undigested food. I started anti-reflux medication and significantly changed my diet. I felt well for many years controlling my symptoms with diet. I was living as cleanly as possible,eating well, and exercising regularly...

My story begins and ends with a plea to lawmakers. Our Declaration of Independence lists our "inalienable rights" of "life, liberty and the pursuit of happiness". I ask you to give me and my fellow sufferers with gastroparesis those rights. There are numerous medications and treatments for gastroparesis in other countries that have not been allowed in the USA. These are approved by the World Health Organization using the same strict standards as our own FDA. Why are these treatment options not available to us? I can only surmise it is because the powerful drug companies here in the USA are...

Deb

Gastroparesis the beginning.
I believe my journey began in 1989 with the first migraine, but I didn't realize it. The first migraine I had was a reaction to Indocin.
I thought, at the time! And it may very well have been!
What you also need to know? Is that I was an avid exerciser, biker, jogger, and really worked at being healthy. Always had sinus and constipation issues but did my best to get around those without slowing down and you would not see me near a doctors office~~ until it interfered with my life!
Which one winter it did with pleurisy... My Dr just...

The views expressed on this page are those of the author(s) and do not necessarily represent the views of, and should not be attributed to, the Digestive Health Alliance (DHA) or International Foundation for Functional Gastrointestinal Disorders (IFFGD).

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